https://www.jackscorner.org/about daily 0.75 2022-10-18 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/dffe095e-57cc-4cab-bfe5-d1d8cc8065d3/Jacks-Corner-SPG50-Truck-638476-01.png About Jack’s Corner - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.jackscorner.org/spg50 daily 0.75 2025-02-09 https://www.jackscorner.org/jacks-story daily 0.75 2025-09-19 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1651756546059-7NGKJDS719V4HQ2XKU43/3F56FF8A-D33A-4603-96B3-5A0513BF415C.JPG Jack’s Story - Jack’s Story We always wanted to be parents. We both wanted babies as soon as we got married. We didn’t expect it to take 3 years, countless medical procedures, losses, and the gift of modern science to have one. But it did. Jack is our miracle. Jack was born in August of 2017, perfectly healthy. When he was around 6 months old, we noticed he wasn’t meeting some milestones. Devin was worried but everyone, including doctors, told us he was just fine. He might be delayed but he would develop in his own time. We started Jack with physical therapy anyway and began working with a pediatric neurologist to determine the cause of his delays. Everything changed on April 6, 2022. After years of therapy, evaluations, and testing we were told that Jack has an extremely rare genetic disorder called SPG50. The doctors told us that SPG50 is degenerative, both physically and mentally. The doctors explained that spasticity starts in children’s legs, slowly taking away their ability to walk. The spasticity then takes away their ability to use their hands, and ultimately, their mental capacity. Our world stopped turning at that moment. The bottom fell out from beneath us. Hearing that for our sweet little boy was pain like we’ve never experienced before. Our hearts were broken. On our darkest day, we were also given a ray of hope. Doctors told us that a father in Canada, Terry Pirovolakis, had spent 4 years working to develop a gene therapy to treat his son who also has SPG50. Just weeks prior, his little boy Michael had received the first dose. It was incredibly hard to process, but in the midst of the devastation and fear and sadness, there was hope. We could save Jack. And that’s why we started Jack’s Corner. We need your help to cure Jack and other children with SPG50. https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1651543566546-P6KY4FWIIEAI3IWPZLN5/IMG_2035%2B%25281%2529.jpg Jack’s Story - About Jack To know Jack is to know the twinkle in his eye, the sweetness of his heart, and the gift of his laugh, which is our favorite sound in the world. He is loving, smart, and happy. He delights in reading, adores trucks, and has fallen in love with horseback riding. Jack has a very specific taste in music (more Drew Holcomb, please!) and can name a song from hearing the first few bars. Jack would be outside 24/7 if he could be. The beach is his favorite place, where he needs only a shovel to dig and his legs to run to be happy. https://www.jackscorner.org/get-involved daily 0.75 2022-10-17 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1652124935779-81KI49RXPOPYV84IQPTG/Jacks-Corner-Fundraise-SPG50-638476-01-01-01.png Get Involved https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1652124948010-4GWT95RRF1GPDHLZLUR9/Jacks-Corner-Donate-SPG50-638476-01-01.png Get Involved https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1652125030328-UIXB778ZRX7DCVAOGZP5/Jacks-Corner-Volunteer-SPG50-638476-01-01-01-01.png Get Involved https://www.jackscorner.org/contact-us daily 0.75 2022-10-06 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1665081562663-05K3L6VSPBFW7AB62U40/IMG_1957.JPG https://www.jackscorner.org/donate daily 0.75 2024-07-29 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1665081326351-XIEDUUI8O8J1HDEQPKL3/3F56FF8A-D33A-4603-96B3-5A0513BF415C.JPG https://www.jackscorner.org/video daily 0.75 2022-10-16 https://www.jackscorner.org/thanks daily 0.75 2023-04-04 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/11964ae5-1479-4a13-9834-83c626df2c11/339863408_220130194031078_7883967712629262958_n.jpg https://www.jackscorner.org/events daily 0.75 2024-09-10 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/7b6603d4-e9d4-453f-81e9-f91b938e00ab/JCF+Event+1.jpeg https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/a88d3149-fad7-49aa-802b-4c12b4ca8079/JCF+4.jpeg https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/69956114-b713-4dbc-b349-f86024be60f8/JFC+2.jpeg https://www.jackscorner.org/lockards daily 0.75 2025-09-19 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/701b6a8c-f2fa-4017-aa25-928d4a358ffb/RS-095+%282%29.jpg https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/379194bf-a87a-4e65-95d5-31d4c7448583/RS-082.jpg https://www.jackscorner.org/cade daily 0.75 2025-09-19 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/9afa3998-3397-4f60-b24e-f36f84e1e548/IMG_1486.jpg https://www.jackscorner.org/lincoln daily 0.75 2025-09-19 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/6f3f31d9-2273-4eab-a890-a2592502d333/230404-JordanMedeiros-Maternity-AP36.jpg https://www.jackscorner.org/pumpkin-art daily 0.75 2024-07-01 https://www.jackscorner.org/auction-item daily 0.75 2024-07-08 https://www.jackscorner.org/thermometer daily 0.75 2024-08-01 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/8d7d247e-64d0-4851-bdab-99b347e26073/JCF+Thermometer.png https://www.jackscorner.org/jacks-corner-foundation-network daily 0.75 2026-01-02 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1fa98620-0703-444f-ba59-a6f577a430e7/Cade%27s+Corner+Black.png https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/fcdbaf2b-f1cd-443d-b261-2c87e608a745/JCF-Black+%281%29.png https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/a28e3a29-7daa-444a-9e79-6c7c84519ede/Lincoln%27s+Corner+Black.png https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/4f49f8f9-53fb-4f58-9b11-c70781a7a8ee/Naomi%27s+Corner+Black.png https://www.jackscorner.org/lincolns-video daily 0.75 2024-07-27 https://www.jackscorner.org/cades-video daily 0.75 2024-07-27 https://www.jackscorner.org/naomis-video daily 0.75 2024-07-29 https://www.jackscorner.org/eduardo daily 0.75 2024-09-05 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/10cdc0fc-be67-4c89-a79a-d0a0cc20ca31/DB742163-27DC-4AEB-88C4-168739AC98BE.JPG https://www.jackscorner.org/dua daily 0.75 2024-09-05 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/37bd3a26-e5fa-488e-9250-1d873739eb3d/1000175423.jpg https://www.jackscorner.org/map-homepage daily 0.75 2024-11-27 https://www.jackscorner.org/flag-challenge daily 0.75 2024-11-27 https://www.jackscorner.org/flag-waitlist daily 0.75 2024-12-04 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/93f0b097-7836-40ca-9a77-59bfcaa0c374/Juneau.jpeg https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/f6133cb6-29cc-4c1a-b790-fad9e02a338c/Lincoln+Scio.jpg https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/6b3189ee-757b-4949-97c1-39020a983a07/Untitled+2.PNG https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/45fad178-babe-4dd5-b771-1888863edfe6/IMG_3245+Copy.jpg https://www.jackscorner.org/treatment daily 0.75 2025-09-19 https://www.jackscorner.org/home daily 1.0 2026-01-02 https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/495c92af-0fba-424c-904b-56e5d899d02e/tempImageV574JL.jpg Jack's Corner Foundation - we believe that A cure exists. The gene therapy, “Melpida”, has been developed to treat SPG50 and has received FDA approval for a clinical trial. Public funding is the only thing standing in the way of more children receiving the therapy. We need your financial help so that the treatment can be manufactured and administered as soon as possible. https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1652127893001-K5E3EW3IUI1L8T8CETUO/Jacks-Corner-Donate-SPG50-638476-01.png Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1652127909595-LSNMKU7HYQX3XOX57YB7/Jacks-Corner-Research-SPG50-638476-01.png Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/1652127816881-3NRSHXR0WRP5MIZBMZM2/Jacks-Corner-Awareness-SPG50-638476-01-01.png Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/e3875ca5-b6d8-4e49-9062-bfff0c70d8aa/IMG_7960.png Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/8a9c5080-f1d8-421e-af75-523050b0f650/IMG_0192.jpeg Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/573d7c12-4795-4da5-9b6d-6e09838e17d1/IMG_8342+2.png Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/dde45c58-03a3-4396-9b6f-306964ec100d/IMG_0591.JPG Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/10cdc0fc-be67-4c89-a79a-d0a0cc20ca31/DB742163-27DC-4AEB-88C4-168739AC98BE.JPG Jack's Corner Foundation https://images.squarespace-cdn.com/content/v1/626a8cbc302d187c7577c4ef/37bd3a26-e5fa-488e-9250-1d873739eb3d/1000175423.jpg Jack's Corner Foundation